PUBLICATIONS FROM THE CSSCD

• Gaston MH, Rosse WF. The cooperative study of sickle cell disease: review of study design and objectives.

Am J Pediatr Hematol Oncol 1982;4:197-201.

• Steinberg MH, Rosenstock W, Coleman MB, Adams JG, Platica O, Cedeno M, Rieder RF, Wilson JT, Milner P, West S. Effects of thalassemia and microcytosis on the hematologic and vaso-occlusive severity of sickle cell anemia.

Blood 1984;63:1353-1360.

• Platt OS, Rosenstock W, Espeland MA. Influence of sickle hemoglobinopathies on growth and development.

N Engl J Med 1984;311:7-12.

• Embury SH, Gholson MA, Gillette P, Rieder RF. The leftward deletion alpha-thalassemia-2 haplotype in a black subject with hemoglobin SS.

Blood 1985;65:769-771.

• Farber MD, Koshy M, Kinney TR. Cooperative study of sickle cell disease: demographic and socioeconomic characteristics of patients and families with sickle cell disease.

J Chron Dis 1985;38:495-505.

• Pearson HA, Gallagher D, Chilcote R, Sullivan E, Wilimas J, Espeland M, Ritchey AK. Developmental pattern of splenic dysfunction in sickle cell disorders.

Pediatrics 1985;76:392-397.

• Gaston MH, Verter JI, Woods G, Pegelow C, Kelleher J, Presbury S, Zarkowsky H, Vichinsky E, Iyer R, Lobel J, Diamond S, Holbrook CT, Gill F, Ritchey K, Falletta JM, for the Prophylactic Penicillin Study Group. Prophylaxis with oral penicillin in children with sickle cell anemia: a randomized trial.

N Engl J Med 1986;314:1593-1599.

• Zarkowsky H, Gallagher D, Gill F, Wang WC, Falletta JM, Lande WM, Levy PS, Verter JI, Wethers D. Bacteremia in sickle hemoglobinopathies.

J Pediatr 1986;109:579-585.

• Espeland M. Estimation of growth curves from longitudinal data collected at irregular time intervals.

Comput Biomed Res 1986;19:575-587.

• Gaston M, Smith J, Gallagher D, Flournoy-Gill Z, West S, Bellevue R, Farber M, Grover R, Koshy M, Ritchey AK,Wilimas J, Verter J. Recruitment in the Cooperative Study of Sickle Cell Disease (CSSCD).

Controlled Clinical Trials 1987;8:131S-140S.

• Steinberg MH, West MS, Gallagher D, Mentzer W. Effects of glucose-6-phosphate dehydrogenase deficiency upon sickle cell anemia.

Blood 1988;71:748-752.

• Gill F, Brown A, Gallagher D, Diamond S, Goins E, Grover R, Lubin B, Moore G, Gaston MH. Newborn experience in the cooperative study of sickle cell disease.

Pediatrics 1989(supp);83:827-29.

• Leikin SL, Gallagher D, Kinney TR, Sloane D, Klug P, Rida W. Mortality in children and adolescents with sickle cell disease.

Pediatrics 1989;84:500-508.

• Koshy M, Entsuah R, Koranda A, Kraus AP, Johnson R, Bellevue R, Flournoy-Gill Z, and Levy P. Leg ulcers in patients with sickle cell disease.

Blood 1989;74:1403-1408.

• Espeland MA, Platt OS, and Gallagher D. Joint estimation of incidence and diagnostic error rates from irregular longitudinal data.

JASA 1989;84:972-979.

• Gaston M and Verter J. Sickle cell anaemia trial.

Statistics in Medicine 1990;2:503-510.

• Rosse WF, Gallagher D, Kinney TR, Castro O, Dosik H, Moohr J, Wang W and Levy PS. Transfusion and alloimmunization in sickle cell disease.

Blood 1990;76:1-5.

• Espeland MA, Gallagher D, Tell GS, Davison LL, Platt OS. Reliability of Tanner stage assessments in a multi-center study.

Am J Human Biology 1990;2:503-510.

• Platt OS, Thorington BD, Brambilla DJ, Milner PF, Rosse WF, Vichinsky E, Kinney TR. Pain in sickle cell disease: rates and risk factors.

N Engl J Med 1991;325:11-16.

• Milner PF, Kraus AP, Sebes JI, Sleeper LA, Dukes KA, Embury SH, Bellevue R, Koshy M, Moohr JW, Smith J. Sickle cell disease as a cause of osteonecrosis of the femoral head.

N Engl J Med 1991; 325: 1476-1481.

• West MS, Wethers D, Smith J, Steinberg M. Laboratory profile of sickle cell disease: a cross sectional analysis.

J Clin Epidemiol 1992; 45: 893-909.

• Wang WC, Grover R, Gallagher D, Espeland M, Fandal A. Developmental screening in young children with sickle cell disease: results of a cooperative study.

Amer J Pediatr Hematol/Oncol 1993;15:87-91.

• Milner PF, Kraus AP, Sebes JI, Sleeper LA, Dukes KA, Embury SH, Bellevue R, Koshy M, Moohr JW, Smith J. Osteonecrosis of the humeral head in sickle cell disease.

Clinical Orthopaedics and Related Research 1993;289:136-143.

• Espeland M, Rushing JT, DeVault A. Estimating incidence and diagnostic error rates for bivariate progressive processes.

Biometrics 1993;49:1010-1021.

• Platt OS, Brambilla DJ, Rosse WF, Milner PF, Castro O, Steinberg MH, Klug PP. Mortality in sickle cell disease: Life expectancy and risk factors for early death.

N Engl J Med 1994;330:1639-1644.

• Castro O, Brambilla DJ, Thorington B, Reindorf CA, Scott RB, Gillette P, Vera JC, Levy PS. The acute chest syndrome in sickle cell disease: Incidence and risk factors.

Blood 1994;84:643-649.

• Brown AK, Sleeper LA, Miller ST, Pegelow CH, Gill FM, Waclawiw MA. Reference values and hematologic changes from birth to five years in patients with sickle cell disease.

Arch Pediatr Adolesc Med 1994;148:796-804.

• Brown AK, Sleeper LA, Pegelow CH, Miller ST, Gill FM, Waclawiw MA. The influence of infant and maternal sickle cell disease on birth outcome and neonatal course.

Arch Pediatr Adolesc Med 1994;148:1156-1162.

• Gill FM, Sleeper LA, Weiner SJ, Brown AK, Bellevue R, Grover R, Pegelow CH, Vichinsky E. Clinical events in the first decade in a cohort of infants with sickle cell disease.

Blood 1995; 86:776783.

• Koshy M, Weiner SJ, Miller ST, Sleeper LA, Vichinsky E, Brown AK, Khakoo Y, Kinney TR. Surgery and anesthesia in sickle cell disease.

Blood 1995; 86:3676-3684.

• Covitz W, Espeland M, Gallagher D, Hellenbrand W, Leff S, Talner N. The heart in sickle cell anemia: The Cooperative Study of Sickle Cell Disease (CSSCD).

Chest 1995;108:1214-1219.

• Smith JA, Espeland M, Bellevue R, Bonds D, Brown AK, Koshy M. Pregnancy in sickle cell disease: Experience of the Cooperative Study of Sickle Cell Disease.

Obstet Gynecol 1996;87:199-204.

• Armstrong FD, Thompson RJ, Wang W, Zimmerman R, Pegelow CH, Miller S, Moser F, Bello J, Hurtig A, Vass K for the Neuropsychology Committee of the Cooperative Study of Sickle Cell Disease. Cognitive functioning and brain MRI in children with sickle cell disease.

Pediatrics 1996;97:864-870.

• Moser FG, Miller ST, Bello JA, Pegelow CH, Zimmerman RA, Wang WC, Ohene-Frempong K, Schwartz A, Vichinsky E, Gallagher D, Kinney TR. The spectrum of central nervous system abnormalities in sickle cell disease as defined by magnetic resonance imaging: A report from the Cooperative Study of Sickle Cell Disease.

Am J Neuroradiol 1996;17:965-972.

• Pegelow CH, Colangelo L, Steinberg M, Wright EC, Phillips G, Smith J, Vichinsky E. Natural history of blood pressure in sickle cell disease: Risks for stroke and death associated withrelative hypertension in sickle cell anemia.

Am J Medicine 1997;102:171-7.

• Vichinsky EP, Styles LA, Colangelo LH, Wright EC, Castro O, Nickerson B: Acute chest syndrome in sickle cell disease: Clinical presentation and course.

Blood 1997;89:1787-92.

• Nickerson BG, Browning I, Weiner S, Smith JA, Wang W, Miller S, Wright EC,Tapson V, Pegelow CH, Ohene-Frempong K, Vichinsky E. Pulmonary function in children with sickle cell disease: A report of the Cooperative Study of Sickle Cell Disease.

(submitted to J Pediatr 3/96)

• Ohene-Frempong K, Weiner SJ, Sleeper LA, Miller ST, Embury SH, Moohr JW, Wethers DL, Pegelow CH, Gill FM. Cerebrovascular accidents in sickle cell disease: rates and risk factors.

Blood (in press)

(List compiled by the New England Research Institute , Watertown, Mass.) Updated 9/97.

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